The next couple of days will be a bit crazy. Tomorrow, we have to be in Nashville early for the Infant CF clinic. Yay, we get to drive through morning rush hour traffic, but I would rather go early and get it over with than drive through the evening rush hour traffic.
Olivia has been fussy the past few days, not sure if it is just normal baby fussiness, her having gas, or if it is acid reflux (which they told us at the clinic that CF patients tend to have more often than norm). They told us we would be constantly wondering if things were normal kid stuff or caused by the CF now I'm beginning to see what they mean. I weighed her earlier and she was at 6 lbs 3 oz. They want her to be in the 50% for weight vs height (BMI). Last check she was at 11%, we'll see how much closer this gets her tomorrow (and how accurate our little scale is.
Thursday, I have an appointment at DHS to try and get Olivia on TennCare to help offset some of her future expenses. Even if she/we don't qualify I have to do this before the Child Special Services at the Health Department can finish they're paperwork. We should qualify for CSS services even if not for the TennCare. It would be nice if she qualifies for both. Even nicer if I didn't have to jump through all the hoops.
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