Wednesday, October 12, 2011

My original post on October 7th

This is my original post on Facebook on October 7th after we had learned about Olivia having Cystic Fibrosis.

OK. An update on Olivia. One of her original newborn screenings came back with an abnormal reading so last week I took her to the local Health Dept. and had the screening re-done. So this Wed. we got a call that the screening still came back abnormal. So we spent all day yesterday at Vanderbilt with the specialists for that particular screening to check for possible problems.

The good news - we got a same-day diagnosis. No waiting.
The bad news - she has cystic fibrosis

Good - It's treatable
Bad - It's NOT curable 

I would post more on it but I'm still trying to get my head wrapped around all the info.

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