Wednesday, October 26, 2011

Infant CF clinic visit

Today she weighed 2.8 kg or 6.16 lbs and was 48.5 cm / just over 19 in long. Not sure what the ratio of weight to length was, but she's not gained as much as they want. She averaged 23 grams per day gain and they wanted 30 grams per day. The reason they want her in the 50th % for BMI is that research shows better lung development and although the lung keeps making new cells most are made during the first two years.

They upped the amount of Creon (her digestive enzyme med) to 1.5 pills per feeding. We are fortifying the breast milk with 1/4 tsp of a specialty formula called Pregestimil which stayed the same this visit. We are now having to add salt to her feedings. In a 24 hour period we add 1/8 tsp of salt. Basically spreading one small packet to 6-7 feedings.

We go back in two weeks. If she increases how much she eats at one time, how much Creon she gets at each feeding will be increased. This will probably happen at every visit for a while.

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