Yesterday was CF clinic day.
Her weight was at 11.6 pounds and her height was at 24in. Since she gained in both, her BMI stayed the same as last visit 14.2 (not sure what that is percentage-wise). They want her BMI at 50% so they were glad that she didn't lose and she gained but the nutritionist wants her to eat more ounces in a day and more calories to get the percentage. Mike has issues with this because he is afraid she will develop bad eating habits/comfort eating. I don't have as much problems with this as I have been reading how hard it is pancreatic insufficient/cf'ers to gain and keep on weight. Since we will be increasing the ounces/calories in her bottle, we are to go up on her Creon6 to 2.5 pills per feeding. (Her bottles are to be 3-4 ounces of breast milk fortified with 2 tsps of Pregistimil plus 1/8 tsp salt spread over all the bottles for the day. This makes for approximately 28 calorie per ounce bottle and most formulas when mixed the normal way are between 20-22 calories.) There were no other significant dietary changes.
Her o2 stats were at 100. We are pretty sure there is no lung involvement at this point in time. However, yesterday we did her baseline chest x-ray so we will find out the results of that at the next appointment. We don't have to go back for two months. Yay!
Today was her pediatrician appointment. She's meeting all her milestones. They had her weight and height different. Vandy has to be much more meticulous with that because of her cf, I think I'll stick with their readings. LOL. Although, they were much more pleased with her weight gain than the Vandy nutritionist. She showed off for them, in a good way - babbling, smiling, trying to stand and roll when she shouldn't, etc. We go back in three months for a milestone checkup.
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