We did the CF Clinic visit this past Wednesday.
Olivia is up to 10.7 lbs and didn't gain any length, 23 in. This puts her BMI up to 14.2 (originally 10.4, I think). We didn't change any of her meds this time. We did ask the nutritionist to send in a prescription for vitamins since the Creon ppl won't send her vitamins now that she is on TennCare. So far we haven't seen a script come in to the pharmacy for the vitamins so I guess we are going to have to send a message to remind her. The nutritionist gave the ok to start other solids besides the cereals.
We got the results of the genetics test. She has two different mutations:
1) deltaF508 - the most common marker
2) 394delTT - from what little I have been able to find, this one is considered a Nordic mutation (common in Denmark, Finland, etc.), eh, I guess she has a little Viking in her.
I need to find the time to sit down and do more research on both mutations. However, from everything I've read and been told, people with the same exact mutations can have totally different outcomes.
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