At 3 weeks old, we discovered our daughter, Olivia, has cystic fibrosis. Originally, I created this blog to document her CF journey. At this time, I will be using it to document our toddler/preschool homeschool journey that we will be doing during some of her treatment times.
Saturday, June 8, 2013
Relief times 2
We got the Genotyping back for the older 2 girls. Both are carriers of the CF gene but neither has it. One has the most come gene - the DeltaF508 and the other has the other gene that Olivia has - the 394deltt. One of them is also a carrier for another rare genetic disease (Zellweger Syndrome Spectrum). I haven't really had time to investigate it other than doing a quick general search. But from that search it looks like it may be even rarer than CF. Good thing she's only a carrier.
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