Tuesday, February 26, 2013

CF clinic visits for Jan 30 and Feb 20

Since I'm usually in the living room with Olivia, I don't get in the computer very often and it's hard to type on the iPod thus the reason I've gotten behind on updates.

So for the Jan. 30 visit, we met with a doc we've only met once. Before this visit, we were trying the removal of the daytime NG feeds but keeping the overnight feeds. Since she wasn't taking as much as they would like orally, they decided to put the day feeds back. Which to us was a bit confusing. She had gained weight but no height so the percentage between ht/wt would have been higher. Plus the doc gave us a percentage that was ONLY her weight % which was not what we had asked. We, of course, had asked the % ht/wt. The doc wanted us to come back in 2 weeks, hubs wanted 1 month, it was finally settled on 3 weeks.

Last week's visit (2-20) I was worried about because Olivia had a tummy bug the week before the visit. Thanks older sister Ellie for sharing your tummy bug =\. LOL. Olivia lost some weight (about 1 lb) during the tummy bug and I wasn't sure if she had gained it back yet. She had gained it back and weighed a *whopping* .04 kg more than our previous visit. The PA (our normal provider) was ok with her weight but you could tell she wasn't terribly pleased with it. *rolleyes* Olivia had also developed a slight cough from drainage. I'm pretty sure having vomit come out your nasal passages will irritate it enough to cause so drainage. They weren't worried about it since it wasn't in her chest. She also had a little fluid in her ears but no infection. Pretty sure that was caused by the drainage/vomiting.

They said they would consider a slow removal of day feeds at the next clinic visit if she shows good gain. Since the tummy bug she has pretty much completely quit eating orally so I'm not sure how we're going to get her to eat again. /sigh

I think that pretty much covers her clinic visits.

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