Took Olivia for immunizations Wednesday. They are a walk-in health department so I don't have to make an appointment to do these and they don't weight her when they do them. She did good, only cried for a second or two. I waited until she was showing some irritation before giving her any pain meds for the immunizations. She never got a fever but she started fussing when we touched her legs where the shots were given so I gave her one dose and she was good to go.
I was able to get her to sit last night with no support anywhere near her. Yay! So now we have the major milestones of rolling both ways and sitting unsupported out of the way.
This excess of pollen ( seasonal allergies ) seems to be only bothering her slightly. Occasionally I'll see some clear drainage or hear a small cough which could also be from the reflux.
Eliana has started the spring soccer season. They had their first game last Saturday and won. This Saturday's game will probably be a lot tougher. I've seen this other coach from previous seasons and he always does a good job teaching the kids.
Both Eliana and Alexis wanted to do children's choir at church again. It makes Wednesday's interesting since we have Ellie's soccer practice right before choir practice. They are practicing the VBS songs this go around. In the fall if they decide to do it again, they will start on the Christmas play.
At 3 weeks old, we discovered our daughter, Olivia, has cystic fibrosis. Originally, I created this blog to document her CF journey. At this time, I will be using it to document our toddler/preschool homeschool journey that we will be doing during some of her treatment times.
Thursday, March 29, 2012
Thursday, March 15, 2012
This month's doctor visits
Yesterday was CF clinic day.
Her weight was at 11.6 pounds and her height was at 24in. Since she gained in both, her BMI stayed the same as last visit 14.2 (not sure what that is percentage-wise). They want her BMI at 50% so they were glad that she didn't lose and she gained but the nutritionist wants her to eat more ounces in a day and more calories to get the percentage. Mike has issues with this because he is afraid she will develop bad eating habits/comfort eating. I don't have as much problems with this as I have been reading how hard it is pancreatic insufficient/cf'ers to gain and keep on weight. Since we will be increasing the ounces/calories in her bottle, we are to go up on her Creon6 to 2.5 pills per feeding. (Her bottles are to be 3-4 ounces of breast milk fortified with 2 tsps of Pregistimil plus 1/8 tsp salt spread over all the bottles for the day. This makes for approximately 28 calorie per ounce bottle and most formulas when mixed the normal way are between 20-22 calories.) There were no other significant dietary changes.
Her o2 stats were at 100. We are pretty sure there is no lung involvement at this point in time. However, yesterday we did her baseline chest x-ray so we will find out the results of that at the next appointment. We don't have to go back for two months. Yay!
Today was her pediatrician appointment. She's meeting all her milestones. They had her weight and height different. Vandy has to be much more meticulous with that because of her cf, I think I'll stick with their readings. LOL. Although, they were much more pleased with her weight gain than the Vandy nutritionist. She showed off for them, in a good way - babbling, smiling, trying to stand and roll when she shouldn't, etc. We go back in three months for a milestone checkup.
Her weight was at 11.6 pounds and her height was at 24in. Since she gained in both, her BMI stayed the same as last visit 14.2 (not sure what that is percentage-wise). They want her BMI at 50% so they were glad that she didn't lose and she gained but the nutritionist wants her to eat more ounces in a day and more calories to get the percentage. Mike has issues with this because he is afraid she will develop bad eating habits/comfort eating. I don't have as much problems with this as I have been reading how hard it is pancreatic insufficient/cf'ers to gain and keep on weight. Since we will be increasing the ounces/calories in her bottle, we are to go up on her Creon6 to 2.5 pills per feeding. (Her bottles are to be 3-4 ounces of breast milk fortified with 2 tsps of Pregistimil plus 1/8 tsp salt spread over all the bottles for the day. This makes for approximately 28 calorie per ounce bottle and most formulas when mixed the normal way are between 20-22 calories.) There were no other significant dietary changes.
Her o2 stats were at 100. We are pretty sure there is no lung involvement at this point in time. However, yesterday we did her baseline chest x-ray so we will find out the results of that at the next appointment. We don't have to go back for two months. Yay!
Today was her pediatrician appointment. She's meeting all her milestones. They had her weight and height different. Vandy has to be much more meticulous with that because of her cf, I think I'll stick with their readings. LOL. Although, they were much more pleased with her weight gain than the Vandy nutritionist. She showed off for them, in a good way - babbling, smiling, trying to stand and roll when she shouldn't, etc. We go back in three months for a milestone checkup.
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