Well the CF clinic has moved from the 5th floor to the 10th floor. They are now doing this thing to try and not spread 'contact' germs between CF patients. So they put on the disposable gloves and gowns between visiting each room. Makes it a bit more interesting watching them pull on and off gloves, etc. lol
They took a few more stats this time too. Olivia weighed 4.44 kg (9.76 lbs) and was 58.5cm (23in). Her O2 was at 100. Underarm temp 97.4*. BP, which they hadn't taken before, was 89/43. All this before we even got to the room.
Get to the room and do the normal "Is all this information still the same" routine with the nurses. Then wait what feels like a really long time to see the nurse practitioner, who is the person we usually see. She likes her weight/growth, listens to her breathing, decides to add Prevacid for the acid reflux (they may remove the Zantac later), and checks to see if we have any questions.
Next up is the nutritionist. She checks to see how much Olivia is eating at one time, ups the Creon 6 to 2 pills per feeding, gets us another can of Pregestimil, fills out the paperwork for WIC to get more cans of Pregestimil, and gives the OK to do small amounts of rice cereal mixed with breast milk or formula.
Then lastly comes the bad part, annual lab work. Back in come the nurses. They draw 14-16cc of blood from her scalp (actually easier than doing her leg or heel), but still horrible =( They had to prick her twice to get enough. She screamed bloody murder. =( At least it is only once a year and next time they should need as much, since with this batch they are also doing the genetic testing. The things I remember that they are testing for platelet count, C-diff, and vitamin levels. I know there is more but that is what I remember at the moment.
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