Good visit at the CF clinic today. Olivia is now at 6.83 lbs (3.1 kg) and 19.5 in (48.5 cm) which are both under 3% on the growth charts. However, her BMI is 12.7 which basically means her weight versus her height is at 32% now instead of 9%. So she is creeping up to that 50% that they want her to be.
The company that was supposed to send us special infant vitamins for her hasn't so far so they sent in a prescription to the pharmacy for those. If we get in the others, then that will just be extra that we have. Besides the vitamins, we are adding Zantac. She has a tiny bit of reflux, plus it will help the enzymes work better and gives the vitamins a better absorption rate. Since she is eating a bit more they upped the enzymes from Creon 3's to Creon 6's. We only have to use one pill per feeding of those. With the 3's we were using 1.5 pills per feeding.
We don't have to go back for another month. Hopefully by then we will know if the insurance will cover the genetic blood tests that way we can get them done while we have used up all the deductible.
Oh, and I forgot to mention Vandy has a cool thing setup where I can log in and see all the labwork they have done, her vitals they've taken, any messages from the docs, medicines that she is on, etc.
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