Olivia, Memaw, and I went to her normal clinic visit yesterday.
She was up to 26 lbs 13 oz. and 32.3 inches (88 % weight for length, I think). I have had her down to 120-180 ml at night only for overnight tube feedings. The docs were impressed that I had her down to that little. So the decision was made to trial her without the tube. YAY!!!!!! Now I hope it doesn't backfire and she goes on a feeding strike.
The bad news is that I have to take her back in a month to make sure she holding her ground. I could really use that 2 months that I'm use to in order to get her on track with eating like normal folks. I know she is going to lose some (possibly a lot) of weight now that we have pulled the tube at least until we get her adjusted. I don't think a month is a long enough time frame to make a judgement call on this. =/ But they weren't going to let us pull it unless we agreed to come back in a month. /sigh
I tried to get the nutritionist to tell me how much would be an acceptable loss if a loss did happen and she wouldn't give me any sort of figure. I asked her twice. =/ The only thing any of them really said was "don't stress about it". Yeah, right! *rolleyes*
At 3 weeks old, we discovered our daughter, Olivia, has cystic fibrosis. Originally, I created this blog to document her CF journey. At this time, I will be using it to document our toddler/preschool homeschool journey that we will be doing during some of her treatment times.
Thursday, November 21, 2013
Saturday, November 16, 2013
Soccer Playoffs
Alexis and Eliana participated in AYSO U15 soccer playoffs today. Olivia spent the night with her Memaw last night and came back to her daddy before the older 2 and I made it back home.
We left at 6am and had a 2.5 hour drive to the playoff area. The girls and their team played a total of 4 games. Including their team, there were 5 teams in their age level; two of those teams were from our town. The girls' team had the following record:
1st game loss 3-1
2nd game win 3-0
3rd game win 3-1
4th game win 2-1 (this was against our other hometown team)
There was a scoring system based on whether the team won/loss/tied, how many goals over the other team, and whether or not it was a shut-out game. After all the scoring was done, the girls's team placed 2nd and the other hometown team placed 3rd.
The day itself was a bit chilly and misty/rainy, but the girls had a blast. They really enjoyed themselves. In fact, Alexis enjoyed herself enough that she is considering doing soccer again in the spring and she's not a sports person. LOL.
Our hometown also had 2 U11 teams play. Their age level had a total of 6 teams. Our teams took 1st and 3rd places. =)
We got back home around 8pm and were totally exhausted!
We left at 6am and had a 2.5 hour drive to the playoff area. The girls and their team played a total of 4 games. Including their team, there were 5 teams in their age level; two of those teams were from our town. The girls' team had the following record:
1st game loss 3-1
2nd game win 3-0
3rd game win 3-1
4th game win 2-1 (this was against our other hometown team)
There was a scoring system based on whether the team won/loss/tied, how many goals over the other team, and whether or not it was a shut-out game. After all the scoring was done, the girls's team placed 2nd and the other hometown team placed 3rd.
The day itself was a bit chilly and misty/rainy, but the girls had a blast. They really enjoyed themselves. In fact, Alexis enjoyed herself enough that she is considering doing soccer again in the spring and she's not a sports person. LOL.
Our hometown also had 2 U11 teams play. Their age level had a total of 6 teams. Our teams took 1st and 3rd places. =)
We got back home around 8pm and were totally exhausted!
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