Pretty good clinic visit and general update

Olivia had her clinic visit this morning (May 15). She was a good weight 23 lbs 12 oz (10.8 kg) and height 31.4 in (79.7 cm) . That was a gain of almost 1.5 lbs and almost 1.5 inches in two months at a time when she should be slowing down on growth some. Yay!! We got the official Okay to drop another day time tube feed and don't have to do another regular visit for another 2 months in July.

On another note, she has taken off in the speech department. Pronunciation is still definitely in the "toddler-only-close-family-can-understand" range, but she is doing 2-3 word sentences and more complex concepts. You just have to listen really hard to understand what she is saying. Plus she uses some words to mean several things. Such as, "off" can mean turn off, turn on, up, down, etc. She will also occasionally parrot words back to you. Have to be careful what we say now. haha

She's also initiating going to the "potty" some on her own. We are not officially working on that yet, but have encouraged her to go when we have time to help her.

Some current phrases (not all):
Sissy - for the sisters with the accent on the last syllable LOL
Fishy - real fish or goldfish crackers
Sittin' - when she wants you to sit beside her, usually with a pat of the hand beside her
There she(he/it) is
Mimi or MawMaw - for Memaw
Donna - for Aunt Donna
wheeee - fun at the moment LOL
swing
boll - BALL
Boh - Hairbow (sometimes confused with Ball the way she pronounces them)
Pillow - pillow or very slightly different pronunciation means color/draw
walk
Shoes - for both shoes and socks
Close - to close the door
WoofWoof - for dog
Whoa - something scary or surprising

Worst blogger ever ... maybe pretty close to it LOL

I rarely get a chance to sit down at the computer and type up a blog post. I find it too hard to do on the iPod which I'm on more. I've thought about making Little Miss Olivia a Facebook page. Then I could put short little blurbs up instead.I'm not sure that would really work either. I'll have to think about it some more. Anyways ....

She had her last CF clinic on March 20th. She had gained almost 2 lbs in a month using mostly her NG tube. Very little oral eating, because the tube keeps her so full.  =/ She was at 30 in tall and 22 lb 6 oz. They were happy enough with the gain they said we could take ONE feed to entirely oral. Like she's actually going to get hungry enough to really eat by just removing one tube feeding. Everything I've read about tube weaning says you have to remove a substantial amount of the feedings so that the person actually feels hunger for the weaning to work. /sigh At least they let us go two months until the next CF visit as long as we take her for a pediatrician weight check visit. Which leads us to .....

The pediatrician visit on April 19th. They had her at 31 in tall (Wow a whole inch height gain, that's gonna throw the weight vs. height ratio off some) and 23 lbs 3 oz (another good weight gain even with dropping a tube feed. YAY). She said her milestones where on track except for of course the eating. Not sure how much help the pedi will be with this later. We'll have to see later as we see how much the CF clinic let's us pull her off the NG tube.

Next visit will be to go back on May 15th to the CF clinic. Hopefully she will still be in a good enough Wt-Ht range that we can eliminate one or more tube feeds.